My name is Christophe Lafontant, I am a thirty-three year old young man, currently living with an extremely rare genetic disorder known as Myofibrillar Myopathy. I first became sick at the age of six; however, I was not fully diagnosed until the age of twenty-seven. I experience substantial weakness in my legs, walking with the use of leg braces and primarily using a wheelchair. I have also recently become aware of significant weakness in my shoulders, hands, and feet, making everyday activities very challenging for me. Over the course of my life, I have undergone a number of serious and complicated surgeries, often accompanied by extremely harsh side effects. I refuse to allow my limitations to hold me back from living a full, happy, and positive life.
I finally decided to share my unique story with the world by self publishing a memoir entitled, [1 Man, 3 Hearts, 9 Lives](https://www.amazon.com/Man-Hearts-Lives-resilience-survival/dp/1518837069/ref=sr_1_1?ie=UTF8&qid=1491663995&sr=8-1&keywords=1+man+3+hearts+9+lives) in the hopes that anybody going through a similarly difficult situation may feel inspired and motivated to never give up! Ask me anything!
Link to: Public Proof for IAMA